Axovant Gene Therapies Announces FDA Clearance of IND for AXO-AAV-GM2 Gene Therapy in Tay-Sachs and Sandhoff Diseases
AXO-AAV-GM2 is the first investigational gene therapy to receive IND clearance in Tay-Sachs and Sandhoff diseases Represents Axovant’s second IND clearance for a gene therapy program in the last 12 months NEW YORK, Nov. 09, 2020 (GLOBE NEWSWIRE) -- Axovant Gene...
A Beacon of Hope: Barry Byrne, M.D., Ph.D., receives “See The Light” Award from the Mathew Forbes Romer Foundation
Barry Byrne, M.D., Ph.D., receives “See The Light” Award from the Mathew Forbes Romer Foundation By: Tyler Francischine Oct. 15, 2020 — For families facing a devastating diagnosis of pediatric neurodegenerative genetic disease, Barry Byrne, M.D., Ph.D., provides a...
The Mathew Forbes Romer Foundation Inc Receives 2020 Best of Boca Raton Award
Boca Raton Award Program Honors the Achievement BOCA RATON February 10, 2020 -- The Mathew Forbes Romer Foundation Inc has been selected for the 2020 Best of Boca Raton Award in the Education & Research Foundation category by the Boca Raton Award Program. Each...
MATHEW FORBES ROMER FOUNDATION CELEBRATES CONTINUED ADVANCES IN GENE THERAPY AND RENEWED URGENCY FOR CHILDREN WITH TAY-SACHS AND OTHER FATAL GENETIC DISEASES OF THE BRAIN
South Florida-Based Organization Hosts Annual “Sweetness and Laughter” Gala & “See the Light” Awards Ceremony March 15th at the Broward Center for the Performing Arts Boca Raton, FL, Jan. 17, 2020 – Twenty-two years after The Mathew Forbes Romer Foundation, or...
FIU Nicole Wertheim College of Nursing & Health Sciences Donor Wall Unveiling & Holiday Celebration 2019
Linda Meran and Carole Romer from the MFRF Board had the pleasure of representing the Foundation at the FIU Nicole Wertheim College of Nursing & Health Sciences Donor Wall Unveiling & Holiday Celebration. The beautiful Donor Wall was revealed after several...
Axovant Orphan Drug Designation
AXOVANT GENE THERAPIES RECEIVES ORPHAN DRUG DESIGNATION FROM FDA FOR AXO-AAV-GM1 FOR THE TREATMENT OF GM1 GANGLIOSIDOSIS NEW YORK and BASEL, Switzerland, Nov. 18, 2019 (GLOBE NEWSWIRE) -- Axovant Gene Therapies Ltd. (NASDAQ: AXGT), a clinical-stage company developing...
Ron and Kathy Assaf College of Nursing Teams Up With the Mathew Forbes Romer Foundation
Ron and Kathy Assaf College of nursing students were pleased to receive another impactful visit from the Mathew Forbes Romer Foundation. Among several of its contributions within Nova Southeastern University, the Romer Foundation funds nursing scholarships, helps to...
AXOVANT PRESENTS FIRST EVIDENCE OF CLINICAL STABILIZATION
AXOVANT PRESENTS FIRST EVIDENCE OF CLINICAL STABILIZATION IN TAY-SACHS DISEASE AT THE EUROPEAN SOCIETY OF GENE AND CELL THERAPY 27TH ANNUAL CONGRESS Initial data with AXO-AAV-GM2 suggests stabilization of disease course, attainment of normal developmental milestones,...
The Mathew Forbes Romer Foundation Raises Over $90,000 at Gala and Continues Advancements in Gene Therapy into Clinical Trials
S. Florida-Based Organization and Its Supporters Honor Those Who Have Helped Drive Therapy Breakthroughs Together Boca Raton, FL, April 16, 2019 –The Mathew Forbes Romer Foundation (MFRF), a non-profit organization dedicated to the education and research of...