MATHEW FORBES ROMER FOUNDATION CELEBRATES CONTINUED ADVANCES IN GENE THERAPY AND RENEWED URGENCY FOR CHILDREN WITH TAY-SACHS AND OTHER FATAL GENETIC DISEASES OF THE BRAIN
South Florida-Based Organization Hosts Annual “Sweetness and Laughter” Gala & “See the Light” Awards Ceremony March 15th at the Broward Center for the Performing Arts Boca Raton, FL, Jan. 17, 2020 – Twenty-two years after The Mathew Forbes Romer Foundation, or...
FIU Nicole Wertheim College of Nursing & Health Sciences Donor Wall Unveiling & Holiday Celebration 2019
Linda Meran and Carole Romer from the MFRF Board had the pleasure of representing the Foundation at the FIU Nicole Wertheim College of Nursing & Health Sciences Donor Wall Unveiling & Holiday Celebration. The beautiful Donor Wall was revealed after several...
Axovant Orphan Drug Designation
AXOVANT GENE THERAPIES RECEIVES ORPHAN DRUG DESIGNATION FROM FDA FOR AXO-AAV-GM1 FOR THE TREATMENT OF GM1 GANGLIOSIDOSIS NEW YORK and BASEL, Switzerland, Nov. 18, 2019 (GLOBE NEWSWIRE) -- Axovant Gene Therapies Ltd. (NASDAQ: AXGT), a clinical-stage company developing...
Ron and Kathy Assaf College of Nursing Teams Up With the Mathew Forbes Romer Foundation
Ron and Kathy Assaf College of nursing students were pleased to receive another impactful visit from the Mathew Forbes Romer Foundation. Among several of its contributions within Nova Southeastern University, the Romer Foundation funds nursing scholarships, helps to...
AXOVANT PRESENTS FIRST EVIDENCE OF CLINICAL STABILIZATION
AXOVANT PRESENTS FIRST EVIDENCE OF CLINICAL STABILIZATION IN TAY-SACHS DISEASE AT THE EUROPEAN SOCIETY OF GENE AND CELL THERAPY 27TH ANNUAL CONGRESS Initial data with AXO-AAV-GM2 suggests stabilization of disease course, attainment of normal developmental milestones,...
The Mathew Forbes Romer Foundation Raises Over $90,000 at Gala and Continues Advancements in Gene Therapy into Clinical Trials
S. Florida-Based Organization and Its Supporters Honor Those Who Have Helped Drive Therapy Breakthroughs Together Boca Raton, FL, April 16, 2019 –The Mathew Forbes Romer Foundation (MFRF), a non-profit organization dedicated to the education and research of...
Mathew Forbes Romer Foundation Celebrates New Breakthrough in Gene Therapy Treatment for Tay-Sachs & Other Children’s Genetic Diseases
S. Florida-Based Organization Hosts Annual “Sweetness and Laughter” Gala & “See the Light” Awards Ceremony March 16th in Delray Beach Boca Raton, FL, January 31, 2019 – Twenty-one years after The Mathew Forbes Romer Foundation (MFRF), a non-profit organization...
Blu Genes Foundation gives UMMS $1.4M to bring Tay-Sachs gene therapy clinical trial
The Blu Genes Foundation, a Toronto-based foundation dedicated to the development of gene therapy treatments for rare disease, has donated $1.4 million to UMass Medical School for the advancement of a Phase I/II clinical trial for the genetic disorder Tay-Sachs. The...
20th Anniversary Genetic Testing and Education Events Throughout Florida
In line with The Mathew Forbes Romer Foundation’s (MFRF) ongoing mission to increase awareness of fatal genetic diseases and the importance of testing, we are thrilled to partner with JScreen. As part of the MFRF 20th Anniversary celebration, we have successfully...