Stories

Our Foundation’s mission has and always will be a commitment to promote and lead critical awareness, testing, counseling, and research initiatives that hold promise for the prevention and eventual cure of fatal children’s genetic diseases of the brain. But at the core of it all is our aspiration to help children with genetic diseases of the brain, extend and bring comfort to their lives, and ultimately find a cure to end their suffering.

Following are a few of the stories that have impacted us over the years, reminded us of the importance of the Foundation’s work and mission, and given us hope while often causing tears.