STORIES //

Our Focus is Education & Research of Children's Genetic Diseases of the Brain

MFRF has provided leadership and raised approximately $2.5 million of funding for projects spanning its mission and vision across three pillars: Research of Treatments and Cures, Education and Genetic Screening, and care through Nursing School Educational programs.

MFRF has celebrated wonderful progress in education, genetic testing, and gene therapy patient trials for many affected children and families with fatal genetic diseases of the brain

Following are a few of the stories that have impacted us over the years, reminded us of the importance of the Foundation’s work and mission, and given us hope while often causing tears

Evie

To lose her first child, Evie, ...
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Nicholas

Nicholas was unable to produce critical ...
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Mathew

Mathew was born to Kevin and ...
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Brooke

Brooke was born in 1996 with ...
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William

Back in 2014, the Marquardt family, ...
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Nicole

Nicole Friedland was born a long ...
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Eli

Eli was deeply loved and cared ...
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Cristian

Born a healthy and vibrant boy, ...
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Jordan

On September 17, 2019, after years ...
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Kevin Michael

Kevin Michael Vargas, born to Daniel ...
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Ready to make an impact?

MFRF has celebrated wonderful progress in gene therapy patient trials, education, and genetic testing for many affected children and families with fatal genetic diseases of the brain. Still, there is so much more to do, including earlier detection and expanding treatment availability.

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