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Our Focus is Education & Research of Children's Genetic Diseases of the Brain

MFRF has provided leadership and raised approximately $2.5 million of funding for projects spanning its mission and vision across three pillars: Research of Treatments and Cures, Education and Genetic Screening, and care through Nursing School Educational programs.

MFRF has celebrated wonderful progress in education, genetic testing, and gene therapy patient trials for many affected children and families with fatal genetic diseases of the brain

Mathew Forbes Romer Foundation (MFRF), Inc.

Affiliate Member of National Tay-Sachs and Allied Diseases Association

Employer Identification Number (EIN) / Federal Tax Identification Number:  65-0849159

9858 Clint Moore Road, C111-191
Boca Raton, FL  33496

Phone: (561) 477-0337

Email: info@mfrfoundation.org

Questions? Comments? Interested in Volunteering or becoming involved with the Foundation? Please fill out this quick form, and we’ll get back to you ASAP!

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MFRF has celebrated wonderful progress in gene therapy patient trials, education, and genetic testing for many affected children and families with fatal genetic diseases of the brain. Still, there is so much more to do, including earlier detection and expanding treatment availability.

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