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Leadership
Officers and Board of Directors
Kevin Romer *
President, Mathew Forbes Romer Foundation;
Video Products Engineering Director for Tyco International;
Vice Presidend, National Tay-Sachs and Allied Diseases Association (NTSAD)
Lisajane Romer *
Secretary / Treasurer; Mathew Forbes Romer Foundation;
Product Operations Director for Motorola Carl Meyers
VP Growth & Development; Former President, Corporate Media Communications, Inc., NYC); Former VP Broadcasting, National Hockey League & Services, NYC.
Carole Romer
Former Vice President of B'nai Brith Women International Edward M. Yorke
Managing Director, Vice Chairman, investment Banking Credit Suisse; Member, Board of Trustees, Hospital for Special Surgeries, NY
Richard Gold
Executive Vice President, Promise Healthcare Corporation
Pablo Meles
Partner, Akerman Senterfitt & Eidson, P.A.
Larry Lemanski
Ph.D. Senior Vice President for Research and Strategic initiatives, Temple University, Emeritus
Medical / Scientific Advisory Board
Mislen Bauer, MD, FACMG Director, Medical Genetics Miami Children's Hospital Richard Bennett, DO, FAPP Partner, Pediatric Associates Anne Boynkin, Ph.D. Dean of the Christine E. Lynn College of Nursing, Florida Atlantic University Stuart Horowitz, Ph.D. Director of Research Miami Children's Hospital Shane Palmer, MS, CGC Territory Manager Genzyme Genetics Corporation Anwar Vardag, MD, FAAP, FCCP, FRCPCH, DCH Director, Pediatric Intensive Care West Boca Medical Center / Tenet South Florida HealthSystem Neal Weinreb, MD Director, University Research Foundation for Lysosomal storage Diseases
Advisory Board
Lori Baron
Neil Eisenband, CPA
Dorie Grizzard
Congressman Ron Klein
Judy Levis Markhoff
Lisa Romer Math
Linda Meran
Lois Siegel
Allan Spiro
Honorary Board
Karen Bomber
Amy Brand
Matt Cave
Victoria Cave
Randi Eisenband
Shelley & Frank Friedland*
Pablo Meles
Linda Meran
Ellen Meyers
Roberta Meyers**
Jill Morgenstein
Bob Nichols
Janet Oppenheimer
Ellie Robbins
Richard Robbins, MD
Neal Roher
Mindy Romer
William Romer**
Steve Rosner
Eric Schiffer
Eileen Segal
Lois Siegel*
Tara Siegel
Daniel Vargas*
Jamie Weinstein
*affected families
**deceased
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