Leadership

Officers and Board of Directors

Kevin Romer *
President Director, Advanced Research and Development for Tyco-Sensormatic

Lisajane Romer *
Secretary / Treasurer, Product Marketing Manager for Motorola

Carl Meyers
VP Growth & Development; Former President, Corporate Media Communications, Inc., NYC); Former VP Broadcasting, National Hockey League & Services, NYC.

Carole Romer
Former Vice President of B'nai Brith Women International

Edward M. Yorke
Managing Director, Vice Chariman, investment Banking Credit Suisse;  Member, Board of Trustees, Hospital for Special Surgeries, NY

Larry Lemanski
Ph.D. Vice President of Research & Graduate Studies, Florida Atlantic University President of FAU Research Corp.

Richard Gold
Executive Vice President, Promise Healthcare Corporation

Medical / Scientific Advisory Board

Mislen Bauer, MD, FACMG Director, Medical Genetics Miami Children's Hospital

Richard Bennett, DO, FAPP Partner, Pediatric Associates

Stuart Horowitz, Ph.D. Director of Research Miami Children's Hospital

Shane Palmer, MS, CGC Territory Manager Genzyme Genetics Corporation

Anwar Vardag, MD, FAAP, FCCP, FRCPCH, DCH Director, Pediatric Intensive Care West Boca Medical Center / Tenet South Florida HealthSystem

Neal Weinreb, MD Director, University Research Foundation for Lysosomal storage Diseases 

Advisory Board

Lori Baron
Neil Eisenband, CPA
Dorie Grizzard
Congressman Ron Klein
Lisa Romer Math
Judy Levis Markhoff

Honorary Board

Karen Bomber
Amy Brand
Matt Cave
Victoria Cave
Randi Eisenband
Shelley & Frank Friedland*
Pablo Meles
Linda Meran
Ellen Meyers
Roberta Meyers**
Jill Morgenstein
Bob Nichols
Janet Oppenheimer
Richard Robbins, MD
Neal Roher
Mindy Romer
William Romer**
Steve Rosner
Eric SchifferEileen Segal
Lois Siegel*
Tara Siegel
Allan Spiro
Daniel Vargas*
Jamie Weinstein

*affected families
**deceased