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The Mathew Forbes Romer Foundation emerged in 1998 -- inspired by the strength of a
little boy with a fatal genetic disease -- to lead the fight for education, quality assurance,
and research of children's genetic diseases of the brain.
Education & Research of Children's Genetic Diseases of the Brain
represent our future of hope and potential. Our biggest fears are children with
life threatening diseases.
Our Focus
What: Education & Research of Children's Genetic Diseases of the Brain
Children: They represent our future of hope and potential. Our
biggest fears are children with life threatening diseases.
Genetics:
We are living in a historical Genetics Revolution. Genetic-based causes
and treatments of diseases are providing unprecedented opportunities
for prevention and cures. The Foundation establishes and expands alliances
with universities, hospital and physician networks, and biotechnology
companies to make an impact.
Brain: Diseases that affect a child's
brain, the command center, affect the whole body. The last great medical
challenge is finding effective ways to get treatments through the body's
natural defenses called the Blood-Brain Barrier.
Why: Life Threatening: These diseases affect children of all faiths,
colors, creeds, and economic status. In high-risk groups, as many as 1 in
2,500 births are affected, while 1 in 25 people can carry the defective gene.
Where: South Florida: A region with tremendous potential and
rapidly growing medical demands, is also fighting major challenges with
resources, investment, and national recognition and collaboration. We
are committed to the needs of South Florida, the headquarters for our
Foundation, by attracting new leaders to help guide our organization's
growth. We also established a national network with other organizations
that share our vision to unite the best resources. Our network includes serving as the South Florida Affiliate of the National Tay-Sachs and Allied Diseases (NTSAD) Association which was founded in 1957, as well as other related regional and national organizations.
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