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The Mathew
Forbes Romer
Foundation, Inc.
is an IRS
designated
nonprofit,
tax-exempt
organization
under Section
501(c)(3) of
the Internal
Revenue Code

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The Mathew Forbes Romer Foundation emerged in 1998 -- inspired by the strength of a little boy with a fatal genetic disease -- to lead the fight for education, quality assurance, and research of children's genetic diseases of the brain. Education & Research of Children's Genetic Diseases of the Brain represent our future of hope and potential. Our biggest fears are children with life threatening diseases.


Our Focus

What: Education & Research of Children's Genetic Diseases of the Brain

Children: They represent our future of hope and potential. Our biggest fears are children with life threatening diseases.

Genetics: We are living in a historical Genetics Revolution. Genetic-based causes and treatments of diseases are providing unprecedented opportunities for prevention and cures. The Foundation establishes and expands alliances with universities, hospital and physician networks, and biotechnology companies to make an impact.

Brain: Diseases that affect a child's brain, the command center, affect the whole body. The last great medical challenge is finding effective ways to get treatments through the body's natural defenses called the Blood-Brain Barrier.

Why: Life Threatening: These diseases affect children of all faiths, colors, creeds, and economic status. In high-risk groups, as many as 1 in 2,500 births are affected, while 1 in 25 people can carry the defective gene.

Where: South Florida: A region with tremendous potential and rapidly growing medical demands, is also fighting major challenges with resources, investment, and national recognition and collaboration. We are committed to the needs of South Florida, the headquarters for our Foundation, by attracting new leaders to help guide our organization's growth. We also established a national network with other organizations that share our vision to unite the best resources. Our network includes serving as the South Florida Affiliate of the National Tay-Sachs and Allied Diseases (NTSAD) Association which was founded in 1957, as well as other related regional and national organizations.




The Mathew Forbes Romer Foundation's mission is to promote and lead critical awareness, testing, counseling, and research initiatives that hold promise for the prevention and eventual cure of fatal children's genetic diseases of the brain




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